Why develop an awareness of
EDS/HSD & hypermobility in your practice?
Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) are much more common than previously thought. Following a period of no medical research on EDS/HSD, there is now an extensive and growing community of people who are raising awareness because there is still little support and acknowledgement from the medical community. It is important to note that the Ehlers-Danlos Society is spearheading the development and financial support for new research and medical awareness training.
However, there are very few other initiatives with the goal of improving the quality of life of people with EDS/HSD, and many symptoms are left unmanaged by today’s medical community. The BAC has had the fortune of training people with EDS/HSD to become AT teachers, and throughout this process has developed post-graduate programming for teachers who would like to become versed in the needs of the hypermobile community. Our experience is that Adaptive AT can be a substantial resource for increasing the quality of life for those with EDS/HSD.
As an AT teacher, you have surely run into someone who exhibited some form of hypermobility. It is important to note that not all AT teachers work with the sensitivity necessary to direct hypermobile bodies safely. As people with EDS/HSD ourselves, we have experienced first hand the dangers of assuming that hypermobility just means a greater range of motion. Those living with EDS/HSD do not have the same elasticity in their tissues as those without, so using hands to direct ‘out’ can result in partial or full joint dislocations. Therefore, AT can increase instability in the neuromuscular system and cause more problems. However, when directed in a safer way, AT is extremely powerful and beneficial to students with hypermobility.